Comments on: NJ Herald feature

By: Four days of horse serum - My PICC Line

Four days of horse serum - My PICC Line — Thu, 16 Jul 2009 01:27:48 +0000

[...] started a new treatment on Tueday, June 13th at 2:30am, the same treatment a reader addressed last week, below is a snippet of her comment: …..I have aplastic anemia, but am 4 yrs in [...]

By: Marianne Lauda

Marianne Lauda — Mon, 13 Jul 2009 17:24:14 +0000

Hey Matt,
Best of luck, you are in our thoughts and prayers.
Stay strong!!
The Lauda’s

By: Xiomara Spence

Xiomara Spence — Thu, 09 Jul 2009 13:05:10 +0000

We miss you a lot and wish you the best in your journey. I too had a bone marrow biopsy many years ago and completely understand what you are going through. I am registered in the bone marrow registry and encourage everyone to please take the simple steps to do the same, as you can truly save a life.
Bone marrow matches are even more complicated for those of us with “unique” genetic makeup.
Blood donation is also critical, the time involved during the process is nothing compared to the spiritual reward of knowing that you could be saving a life. In addition no one knows if you or a loved one will be the recipient of the generosity of the blood donated by someone else.
We will follow your progress and will be support you and your family in any way we can.

By: Matthew Sheehan

Matthew Sheehan — Thu, 09 Jul 2009 02:47:57 +0000

Hailey, great to hear a success story. Immunosuppressive therapy is something I certainly have great interest in and plan on posting on in the near future..

-mcs

By: Laura

Laura — Thu, 09 Jul 2009 01:13:54 +0000

I’m awaiting my swab kit in the mail. Cuz… we WILL get your cured. You’re a champion Matt!!! Miss You!

By: Mandy Thaller

Mandy Thaller — Wed, 08 Jul 2009 22:29:27 +0000

Hey Matt! I came across your article in the Herald today and I remember going to elementary and high school with you, I just wanted to say that i am very sorry to hear about what you are going through. I wish you the best of luck with everything and i hope you have a very speedy recovery!!!

By: hailey

hailey — Wed, 08 Jul 2009 22:24:35 +0000

Your site is great, and I wish you all the best. Please continue to write about your experience. I have aplastic anemia, but am 4 yrs in “remission” after ATG & Cyclosporin treatment. My sister is a bone marrow match, but the immunosuppressive therapy worked for me. Diagnosed at 16, now 23.

Is there a reason they chose to forego immunosuppressive therapy as a treatment option for you? Is your case too severe?

Again – great that you are writing. The public should be more educated about bone marrow failure diseases.

By: Kelsey Falkowski

Kelsey Falkowski — Wed, 08 Jul 2009 22:07:24 +0000

Best of luck Matt!