Anything for me…
I check my e-mail often. Once, twice, fifteen times a day. My messages are always read in the order they’re received.
The first is from an old friend who wants to do know what they can do to help. Anything, they write, really anything you need. They ask me how I’m feeling, if I think I’m getting better. They go on to ask who to contact and where to go to be tested, tested to see if they can donate their marrow to me—but, they write, I don’t feel comfortable donating to a random stranger.
I move on to the next e-mail. It’s an update from the grandmother of a 10-year-old boy named Michael. He loves the Phillies, and hip hop and probably everything else that ten year olds love. Last year he was diagnosed with severe aplastic anemia—just like me—well here I’ll let his grandmother explain:
…underwent first ATG treatment, Allergic reactions to meds—Benadryl and Tylenol are mandatory before every transfusion….infection sets in…Ugh..Mikey is sicker than ever from the ATG… Great support from his school and all of his 4th grade classmates but, spending his 10th birthday in bed and transfusion was the pits. He choked on meds, refused to swallow pills….brusing, tears, and frayed nerves all around…Little sister, age 2, confused and bounced from one household to the other..Life as we knew it has become a bad dream…. [Michael]relapses in June, 2nd ATG on the 4th of July. Docs says treatment was not successful; only hope now is a bone marrow transplant.
NO one in family seems to be a match…Community effort to run a drive, 155 people turned out for testing..God please, let there be a match for Michael and all the others out there waiting for their miracle…
I move on to the next unread e-mail. It’s asking if I have found a match yet? Just another concerned person wanting to know what they can do to help. Within the e-mail this person includes a link to a site—www.helpingjanet.com. Janet, is Janet Liang and she is 22 years old, about the same age as me. She is a student at UCLA, and hopes to some day help save the world, but first the world has to help save her. Janet has acute lymphoblastic leukemia, she needs a bone marrow transplant. As of yet she hasn’t had any luck finding one, her brother wasn’t a match. She has a blog—like me—where she and gives video updates, writes about her experience with cancer and offers uncensored insight into being young, ill and frustrated.
And now it’s time to respond, again I do this in order. So it’s back to the first e-mail—the old friend who wants to do anything to help, even donate their bone marrow if need be, but only if it’s for me.
Sign up to join the National Marrow Donor Program here.





November 4th, 2009 at 12:21 am
Hi Matt, I just wanted to touch bases with you. I totally understand what you are meaning. I joined the Bone Marrow Donor list about three years ago. My husband and I joined again two weeks ago in the name of a local cancer patient. Hoping that I would be her match… or just someones match. They dont understand Matt. Until they live with someone who is very close to them who is going what you and my son are going through they just dont understand.
A note to your public “Save a life and sign up to be a bone marrow donor” Who knows maybe you will be Matts life saver or maybe you will be my son’s.
November 4th, 2009 at 12:57 am
Denise,
Thanks for sharing your thoughts. The hard thing about this as an individual you are grateful to everyone that helps and you want them to understand that, but at the same time you also want them to see just how many other people are going through something similar or even worse who they could potentially save. The one thing I continue to learn though is people care, more than I ever thought they would or could…if presented with the facts I know the average person would want to help not just a family member or a friend, but anyone. The challenge is to present the facts without coming across as an insensitive, preachy know-it-all..
-MCS
November 4th, 2009 at 1:55 am
Totally agree! I have been on the marrow transplant list for about 3 years; People have told me I’m crazy for those 3 years because ‘what if they call you and you dont know the person and you have to go through that painful procedure’… Hell, I hope someone would do it for me! And like you have said, it isn’t that painful. I’m sure it isn’t comfortable, but either is going through a disorder that requires the transplant! Keep fighting Matt! Unfortunately, this happened to you but you can help inform so many young people how important it is to donate blood and be on the marrow list. Your time will come and you will have a wonderful recovery and also help out many other people in the future indirectly when a friend of yours (who would have never been on the list before you) needs to donate to someone as well. Keep your head up and as everyone else says, we are all here if you need anything!
November 5th, 2009 at 11:47 am
Deft handling of a delicate situation.
November 9th, 2009 at 11:45 pm
Matt, you never cease to amaze me with your clarity and fortitude. It is wonderful to know that so many people care when, with a disorder such as the one you are experiencing, there must be some feeling of isolation. There are many selfless, amazing souls out there; one of them will be a match.
November 14th, 2009 at 1:58 am
mattie,
I never know what to say on these things. but i want you to know that ive been peepin the site and i love ya guy.