Comments on: When doctors disagree http://mypiccline.com/2009/11/20/when-doctors-disagree/ My personal journey, with aplastic anemia, through the healthcare industry Tue, 22 Feb 2011 01:35:38 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: Mary Barner http://mypiccline.com/2009/11/20/when-doctors-disagree/comment-page-1/#comment-2137 Mary Barner Tue, 08 Jun 2010 17:36:57 +0000 http://mypiccline.com/?p=1036#comment-2137 06/08/2010 Dear Matthew: We have been thinking about you.. and keeping you in prayer...haven't heard from you in quite a while. Hope all is going well.. Michael is doing very well...He did not have to have his transplant and now he is off all meds for the last 5 months.. Miracles do happen,... Hoping to hear the same from you. Sincerely Mary Barner mcbarner@comcast.net 06/08/2010

Dear Matthew:

We have been thinking about you.. and keeping you in prayer…haven’t heard from you in quite a while.
Hope all is going well.. Michael is doing very well…He did not have to have his transplant and now he is off all meds for the last 5 months.. Miracles do happen,…

Hoping to hear the same from you.

Sincerely
Mary Barner
mcbarner@comcast.net

]]> By: Mary Barner http://mypiccline.com/2009/11/20/when-doctors-disagree/comment-page-1/#comment-564 Mary Barner Tue, 01 Dec 2009 16:50:42 +0000 http://mypiccline.com/?p=1036#comment-564 Dear Matthew: Michael had similar reaction to ATG..first treatment supposedly failed..He had his first in February 2009.. He received his 2nd (rabbit serum, instead of Horse serum on the 2nd of July, 2009.) Neuprogen shots continued, ...cyrosporine continue...until...recently...cryrocsporine was stopped last week..docs said not working...however...no transfusions have been given in over 2 months.// Mike is to undergo testing, and preparation for a non-related bone marrow transplant after Christmas... Puzzled by his levels seemingly improved...even though docs stopped cycosporine.. This is a very frustrating disease...One day at a time.....that's all anyone can do. There is no rhyme nor reason to insane diagnosis.. I understand your delimma well. I keep you in my prayers every day. Whatever help I can be to you, please let me know. Sincerely, Mary Barner Dear Matthew:

Michael had similar reaction to ATG..first treatment supposedly failed..He had his first in February 2009.. He received his 2nd (rabbit serum, instead of Horse serum on the 2nd of July, 2009.) Neuprogen shots continued, …cyrosporine continue…until…recently…cryrocsporine was stopped last week..docs said not working…however…no transfusions have been given in over 2 months.// Mike is to undergo testing, and preparation for a non-related bone marrow transplant after Christmas… Puzzled by his levels seemingly improved…even though docs stopped cycosporine.. This is a very frustrating disease…One day at a time…..that’s all anyone can do. There is no rhyme nor reason to insane diagnosis.. I understand your delimma well. I keep you in my prayers every day. Whatever help I can be to you, please let me know.

Sincerely,

Mary Barner

]]> By: Kris Kelley http://mypiccline.com/2009/11/20/when-doctors-disagree/comment-page-1/#comment-549 Kris Kelley Fri, 27 Nov 2009 19:24:08 +0000 http://mypiccline.com/?p=1036#comment-549 Matt You are a brave young man. I'll keep you in my prayers and trust that you will have the strength and opportunity to resolve this. (FYI, I'm Sarah's Aunt) Good luck and good health Matt
You are a brave young man. I’ll keep you in my prayers and trust that you will have the strength and opportunity to resolve this. (FYI, I’m Sarah’s Aunt) Good luck and good health

]]> By: Ellen Regan http://mypiccline.com/2009/11/20/when-doctors-disagree/comment-page-1/#comment-539 Ellen Regan Thu, 26 Nov 2009 01:44:56 +0000 http://mypiccline.com/?p=1036#comment-539 Matt, Don't stop exploring. Try a different hospital if you aren't happy with varying opinions. Granted we all read and hear the same things differently but this is not the time to be wondering who heard what. My best to you and your family. Ellen Matt, Don’t stop exploring. Try a different hospital if you aren’t happy with varying opinions. Granted we all read and hear the same things differently but this is not the time to be wondering who heard what. My best to you and your family. Ellen

]]> By: Dee http://mypiccline.com/2009/11/20/when-doctors-disagree/comment-page-1/#comment-533 Dee Wed, 25 Nov 2009 02:47:27 +0000 http://mypiccline.com/?p=1036#comment-533 This sounds like the same office I go to. As disturbing as this may sound, I think that is how I've been dealing with all of this...the hope that another doctor will have the opinion I want to hear :-) It is SO frustrating, and trying to explain it to friends and loved ones is even more frustrating because they are use to cut and dry answers. This sounds like the same office I go to. As disturbing as this may sound, I think that is how I’ve been dealing with all of this…the hope that another doctor will have the opinion I want to hear :-) It is SO frustrating, and trying to explain it to friends and loved ones is even more frustrating because they are use to cut and dry answers.

]]> By: denise http://mypiccline.com/2009/11/20/when-doctors-disagree/comment-page-1/#comment-521 denise Sun, 22 Nov 2009 16:43:56 +0000 http://mypiccline.com/?p=1036#comment-521 Matt, How wonderful that you can experience such a frustrating situation and come through with a depth of understanding and wisdom that moves us all forward. Matt, How wonderful that you can experience such a frustrating situation and come through with a depth of understanding and wisdom that moves us all forward.

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