Jeana Moore is the grandmother of a leukemia survivor. Her granddaughter, Jada, received a bone marrow transplant at only seven months old, the donor was an unrelated one from Germany. After seeing a life saved, Jeana decided to literally take steps towards spreading awareness; she is walking across the continental United States in hope of [...]
Having removed my jacket for the upcoming blood draw, I sat down. And would do so for the next hour.
Over 60 minutes I observed many things. One, after having trouble inserting IVs into the arms of a few of the older patients the two nurses on duty were running behind schedule. Two, the other patients around [...]
Seun Adebiyi is 26 and has an Ivy League education. He has a great job and a a shot at being an Olympian in 2014. Adebiyi has cancer. Lymphoblastic lymphoma and stem-cell leukemia, the cure is a stem cell transplant. For now Adebiyi has not been able to find a bone marrow match and has [...]
This letter from the chief executive of the National Marrow Donor Program, Jeffrey W.Chell, and the president of the American Society for Blood and Marrow Transplantation, Claudio Anasetti, appeared in the New York Times last week. They argue that changing current laws that bar bone marrow donors from being compensated is a mistake.
“International standard-setting organizations [...]
Shawntell Taylor is a survivor. She was diagnosed with Aplastic Anemia in 2004 has since underwent three unsuccessful interventions, including two rounds of ATG. Taylor explains in the above clip she also had two unrelated donors “cancel on me.”
Like I said, Shawntell Taylor is a survivor.
Above Regina Holliday explains 73 cents, a mural inspired by her late husband’s healthcare experience. Listen to the NPR feature here. In Novemember, Regina submitted her family’s story to myPICCline.
In October I posted my letter of appeal after Blue Cross Blue Shield’s told me it would not cover my bone marrow donor search. After hearing no response for several weeks I resent the letter certified and finally heard back. The verdict was…there was no verdict.
My appeal was not reviewed because I did not provide [...]
The above video gives an informative look at blood. Although short, it captures the importance of blood in maintaining vitality. Many (myself included) depend on blood products from other people and that dependence increases at a rate of 6% each year, according to the American Red Cross.
Thank you to those who are able to donate.
To [...]
The Bone Marrow Failure Disease Research and Treatment Act of 2009 is proposed legislation that would cost $8 million dollars annually and increase the federal government’s commitment to researching and treating acquired bone marrow failure diseases. The legislation directs the Health and Human Services Department to develop a comprehensive strategy to combat these diseases which [...]
Researchers have for the first time performed a successful bone marrow transplant to cure sickle cell disease in adults, according to the Los Angeles Times. The team reported it has developed a much-less-toxic transplant procedure and used it to cure nine of the first 10 patients studied.
The hereditary disorder primarily effects those of African [...]
A. Anemia News
