Its been 140 days since ATG treatment, and as of now it has been unsuccessful. The treatment is based in the thought that aplastic anemia is an autoimmune disease—the bodies white blood cells have attacked it’s bone marrow, causing the marrow to fail and blood production to diminish. Since onset I’ve heard a variety of numbers [...]
I check my e-mail often. Once, twice, fifteen times a day. My messages are always read in the order they’re received. The first is from an old friend who wants to do know what they can do to help. Anything, they write, really anything you need. They ask me how I’m feeling, if I think [...]
As I start hearing the words “bone marrow transplant” more and more, I also hear more and more ignorance as to what it actually means to be a bone marrow donor. The following information was collected directly from marrow.org, the National Marrow Donor Program website and my own personal experience undergoing a bone marrow biopsy [...]
As I’ve mentioned in the past, my insurance company will not cover the search for a bone marrow donor. On Oct.13 they sent an official letter of denial, describing the “search and cell acquisition as a non-covered incidental.” I’ve responded with a letter of appeal. My expectation is they will issue a more formal denial [...]
Many of my friends and family members have joined the national bone marrow registry since all this happened. Some were motivated by the global impact of the gesture, others were hoping to help me in particular; either way the act is noteworthy. I’m going to hop up on the soap box here for a second. [...]
A. Anemia News
